Frontotemporal dementia impacts between 50,000 and 60,000 Americans, according to a rough estimate cited by the Alzheimers Association, and it tends to impact younger people, beginning at age 45. If I were a goldfish, no matter how right the math you read to me was, I would not understand it, you or anything it referred to. Neurosciencealso offers only a partial answer to the question of what makes youyou. Also, I imagine Postgrest is nice for internal admin apps? IMO, it's exploiting a very primitive system: chance (randomness) --> stimulates effort --> get reward. This argument isn't really theologically sound. Also, it does not actually cost insurance companies much money as they can all just raise premiums. At the end of the summer of 2014, Lee took on a project that earned Cloudflare its first bout of internet fame: The company would help websites become encrypted for free. Indeed a sad story and close to home for me. I'll add one piece of praise for Lee's early architecture of Cloudflare. He could operate in deep-thought mode all the time - he is extremely intelligent and extremely focused. So, the short answer is that diagnosis will be difficult, and there isn't really a test, but MRI with gadolinium contrast will show enhancement of the dura, and hopefully someone looking at it can see a leak if it is obvious. She now cannot sit for more than 30 seconds at a time and attempts to run away from home (with no particular destination in mind). achieving a "deeper understanding" of reality. Ill end with a quote from C.S. People are noticing. Then: Not a great leadership signal.. I still managed to get an Engineering degree and hold down regular employment as a software developer. It does not dishonor others, it is not self-seeking,it is not easily angered,it keeps no record of wrongs. They're like the bridge between the dba world and the traditional developer world. In the end, is it really that cruel, when compared to creating a universe that is effectively trying to kill us all every single day? With some problems I can "feel" my brain just blocking, I can't visualise complex data structures. The other engineers immediately started reviewing his code. You should write a blog! https://en.wikipedia.org/wiki/Phineas_Gage. Late Dr. Oliver Sacks in his book "musicophilia" spent a chapter on Frontotemporal Dementia (FTD). I've tried improving my sleep. It worked great with a small team with very low turnover. As he says in an NPR interview: > There's no one-to-one correspondence between a genome and the chances of developing schizophrenia. Something as simple as a prion can completely destroy it and then there's Phineas Gage, someone whom all neurobio students learn about on day one of their course. We got engaged in Rome. Lee is preceded in death by a son, Henry Johnson and his brother Ken Holloway. The brain can be capable of amazing feats of recovery, but it's always going to vary based on someone's pre-existing genetics, environment, age, and the specific damage they might have incurred. A person today has many of the same psychological states as that person a day ago. Human body is a weird thing. The system itself doesn't give a shit about them because the system itself only cares about money. At the same time, given the flashes of lucidity pointed out in this article, you have to wonder if others talking about his condition so much might make him feel like a walking corpse when those hit. If you'd like to post a question, simply register and have at it! As Dr. Ian Carrol of Stanford's research has indicated, they seem to be highly misdiagnosed/undiagnosed as well. The Dignity Memorial brand name is used to identify a network of licensed funeral, cremation and cemetery providers that include affiliates of Service Corporation International, 1929 Allen Parkway, Houston, Texas. He was a brilliant coder when he first started working with me out of college, but I think he really hit his peak ability to focus and do amazing things around 2014 right as we were rolling out Universal SSL. Kristin shipped some of the furniture they'd bought together to make the house feel more familiar to him, and she blanketed a wall in family photos. It's just difficult for me to envision a crueler God if that is indeed the case. With proper consistent mental exercise and training, you can improve your working memory and focus back to what it used to be if not better. Lee retired from Lockheed after 37 years and was a U.S. Navy Veteran. To honor Lees legacy, in 2019, Kristin and the Holloway family established The Holloway Fund for Help and Hope in Honor of Lee Holloway at AFTD, designated 50% to AFTDs support programs, and 50% to research. "An elegant weapon, for a more civilised age". Its just extremely difficult from all angles. His childhood friend Justin Powell remembers Lee strolling into a middle school chess club tournament cold. So you might write something using Java EJBs at some point and then the world moves on and engineers no longer know how those things work. I have effectively retrained my brain to be stimulated by only exciting + novel things. You can still show your support by sending flowers directly to the family, or plant a tree in memory of Lee Holloway. As a software engineer, shit like this scares me. We spent a long time looking for the right reporter and publication. Yea, my theory is that for some people (like myself), the instant-gratification society has been terrible for mental health. Stay strong friend, I believe in a tragic optimism[0] like that outlined in Frankl's 1984 postscript. Those victims likely get written off as a worthless drain on society. As selfish as it sounds, I can only hope that man pioneers research into this for the rest of his life. Sorry, I didn't see this until just now. Lee Holloway, one of three founders of the website security and performance company Cloudflare, was diagnosed with behavioral variant FTD in 2017 at age 36. I immediately forget what I just looked at, read or did. It might get chipped away over the next 30 years or replaced with public option etc, but bringing back the preexisting condition issue would be extremely unpopular. Sounds like you're ready for your next career. Smart, charming, super friendly. We brainstormed whether there were coding challenges we could keep sending him after his diagnosis to keep that part of his mind active. Lee Holloway is our third co-founder and the genius who architected our platform and recruited and led our early technical team. Neurodegenerative diseases scare me out of my wits. Not OP, but I want to say there's a lot more that goes into the development process than just source control, versioning, and code search. and we'd just hook it up. I'm not sure if it's due to the anesthesia, physical stress of the operation, changes to brain blood flow or radiation that my brain was hit with. Lee was a distant parent, showing complete lack of interest in their newborn son. They, at a minimum, can provide data integrity guarantees that you can't get with anything else. He was an Avid bowler and enjoyed woodworking. Such a talent may be completely disconnected from normal intelligence. that he'd carry around a mini, test Cloudflare wherever he went. Sorry about your loss! And, after he left Cloudflare, the article talks about how it seemed like the effects of the disease accelerated. Also it acted like a barrier, the core team who understood the business well worked on the stored procedures, keeping things fast and stable. Cerebrospinal Fluid Leaks are something that can completely mimic a large amount of FTD symptoms, and even in the care of utmost professionals, can be near undetectable - and somehow, treatment can be as beautifully simple as a one and done injection to a hellish guessing game and years of attempts. I think by the time hed be concerned he had lost the ability to be concerned, if that makes any sense. But given the eloquence of the poster's comment, I think the kind of situation we're looking at here is of a different class. Losing your mental faculties is a profound fear especially for smart people. Do Not Sell or Share My Personal Information. Yeah, stored procedures making API calls to external services, sounds like a nightmare of tech debt to unwind. My prayer is that while this time is emotional, the process and article also provide a degree of healing as well. also offers only a partial answer to the question of what makes you. It's isomorphic to your argument; it is your argument's essence. What I wish we could teach younger engineers is: when you run across a system like this, pause. He might have preferred to operate in the background given the nature of his work. These cookies will be stored in your browser only with your consent. I miss those days when I just checked in with him 2-3 times a day rather than having to spend a lot of mental effort to figure out how to serialize lots of trivial stories/subtasks into Jira. 2009), this patient population poses a major burden for healthcare. Dopamine causes you to want, desire, seek out, and search. Lee Holloway, 83 of Cumming, GA passed away August 1, 2022. The saving grace seems to be that he doesn't seem to notice his own ongoing demise. I know where you land on the chart, and I know that you don't know where you land yet think you do. Here's hoping we never develop it. Lee started chattering in repetitive, unceasing loops. Learn about genetic counseling and genetic testing options. The thought of someone I love (in the broadest sense of the word) being affected by this is horrific. Turing Award winner Robert Floyd also had FTD (the variant earlier called Pick's Disease). I dont think Lee ever toiled. This is very similar to my situation, although I'm a bit younger. A quick search finds a few hits, e.g. It does not envy, it does not boast, it is not proud. If this story moves you, and you have the means, consider donating to CSF Leak research at Stanford. http://postgrest.org redirect to: http://postgrest.org/en/v6.0/ which is not the latest version (& not https), maybe you'd like to redirect to: https://postgrest.org/en/v7.0.0/ instead). The docs definitely need a lot of improvement. There are plenty of ways to do this. [1], [1] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2791340/. But then for the briefest of moments she has complete lucid clarity and will ask me about my job and life, and offer to cook me my favorite dish. He spoke fewer sentences, instead muttering sequences of numbers or letters. not "Would you work your tail off for a gamble?". Perhaps we are the ones who are ignorant for why things are this way. But some are, and the bias in our industry is extremely strong toward perceiving them as nightmares. Much of the architecture he dreamed up is still in place. As Cloudflare states in an S-1 IPO filing that it made public today, "Tragically, Lee stepped down from Cloudflare in 2015, suffering the debilitating effects of Frontotemporal Dementia, a rare neurological disease." Blood pressure has been tested, and is normal (120/70). Not not A The gradual decline slowly conditions you, like the proverbial frog in the pot of water. Otherwise theres be no war. > How do you correlate those errors at the application level? Shouldnt have an expectation of god making everything well. In MS SQL, dependency management is so unreliable, that the official tooling misses several classes of dependencies, just depending on the type of syntax you happened to use. I'm sorry, that sounds awful. She says his response was to calmly ask her to file for divorce before she left. If God exists, he's the one that created a biological system that allows for something as horrific as dementia. I had this feeling for many years then finally put together 6 months of effort on an MVP that got zero traction. I think it definitely could be any combination of those things. A funeral service will be held on Saturday, January 14th 2023 at 11:00 AM at the Chapel of C. T. Baker & Sons Funeral Home (634 S Columbia . In 2012, Alexandra told him she was taking an internship at NASA, and she was planning to take their son with her. Maybe you have progress tracking tables with status id columns and timestamps. The article captures the couple's story, Lee's journey to an FTD diagnosis, and the changes FTD brought for their young family. , using recollections as the thread connecting a person's past with their present. Absolutely horrifying. IIRC "dementia" is literally just a description of symptoms. We're the three cofounders of Cloudflare," he boomed, stabbing the air with his finger as he spoke. His wife, Kristin Holloway, witnessed his devastating decline from FrontoTemporal Degeneration (FTD), and made the necessary interventions to save his life. The Supreme Court will be hearing the case this autumn. Good luck. I'm thin/muscular. However I think what's a huge contributing factor is gaining experience. I can imagine people replying "but clearly, you're doing things that you shouldn't be - that's not what SPs are for!". Lee Holloway coded cybersecurity firm Cloudflare into being. He dreamed up is still in place proverbial frog in the broadest sense of the architecture dreamed. 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